NATIONAL GAUCHER FOUNDATION OF CANADA

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Join the Candian Gaucher community! #raredisease News of interest to Gaucher patients and families. Story sharing

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OTTAWA

Address: 83 WINNEGREEN CRT, OTTAWA, OTTAWAWeb: Sign in to see organisation websiteFacebook: NGFCanadaX (Twitter): ngfcanadaICO: 891299745

National Gaucher Foundation of Canada | Lentiviral Vector Gene Therapy Webinar Learn about what it is how this type ofgene therapy works and hear the patient experience from the first Gaucher patient in the world to participate. Thank you Dr. Amato. After many many years of outstanding leadership and patient care in the Canadian Gaucher community we are sad to announce that Dr.

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Leon

- What strategies can we implement to increase awareness and support for Gaucher Disease during October's Awareness Month?

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NATIONAL GAUCHER FOUNDATION OF CANADA

International Rare Disease Day 💜🌎 Today, we stand with the 300 million people worldwide living with a rare disease. In Canada, rare doesn’t mean alone - it means a community of advocates, researchers, and families pushing for better treatments, faster diagnoses, and stronger support. For those living with Gaucher disease, we know firsthand the challenges of navigating a rare condition in a system that often wasn’t built with us in mind.

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Yvonne

Thank you, Dr. Amato, for your incredible dedication to the Gaucher community! Your impact will be felt for years to come. Wishing you all the best in your retirement! 💙 #GaucherAwareness

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Evelyn

- How can we encourage more patients to share their experiences and stories to foster a stronger sense of community within the Canadian Gaucher network?

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NATIONAL GAUCHER FOUNDATION OF CANADA

There’s still time to register for this inforrmative session.

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Jane

Excited to learn more about Lentiviral Vector Gene Therapy in the upcoming webinar! It's great to see innovation and hope for Gaucher patients. Let's keep raising awareness together this October! 🌟 #RareDisease #Hope

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Community Foundations Category

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