The Canadian Hemophilia Society - Société canadienne de l'hémophilie (CHS) is a national voluntary health charity in Canada dedicated to improving the health and quality of life of people with inherited bleeding disorders. Founded in 1953 by a group of hemophiliacs, family members, and physicians, CHS grew from a small Montreal-based support group into a nationwide organization with chapters in every province[3][4].

Mission and Vision

CHS is committed to enhancing the well-being of those affected by inherited bleeding disorders and ultimately to finding a cure. Its vision is a world free from the pain and suffering caused by these disorders[3][5].

Activities and Programs

CHS is actively involved in advocacy, education, and support services for people with bleeding disorders. The organization supports research initiatives, including clinical trials and studies related to gene therapy, chronic pain management, and the economic impact of treatment options. It also administers programs such as the James Kreppner Memorial Scholarship and Bursary Program to assist individuals affected by bleeding disorders[1][2].

Governance and Structure

The society is governed by a dedicated group of volunteers from across Canada who work together to shape national policies and programs tailored to the needs of persons with inherited bleeding disorders. CHS operates through local chapters that engage community members and provide resources and support at the provincial level[3][4].

Registration and Charity Status

The Canadian Hemophilia Society is registered as a charitable organization under the Canada Revenue Agency with the business registration number 118833094RR0001. It complies with CRA requirements and provides tax receipts for charitable donations[3].

This summary presents an overview of the Canadian Hemophilia Society's history, mission, programs, and organizational structure based on available information.