Desmoid Tumour Foundation of Canada

The Desmoid Tumour Foundation of Canada is a Canadian nonprofit organization dedicated to funding research and supporting individuals affected by desmoid tumors. These tumors are rare, locally invasive, soft tissue growths that occur in about 2-4 people per million annually. Although they do not metastasize, desmoid tumors can cause significant damage to surrounding tissues and vital structures as they grow[1].

Mission and Activities

The foundation focuses on finding a cure for desmoid tumors by supporting research initiatives and raising awareness about these rare tumors. They encourage community involvement through various fundraising events and campaigns. One notable event is Athina's Ride, a cycling event aimed at raising funds and promoting awareness about desmoid tumors[3].

Research and Awareness

The Desmoid Tumour Foundation of Canada collaborates with international organizations and researchers to advance knowledge and treatments for desmoid tumors. Funding from the foundation has contributed to significant studies, including research on effective therapies like sorafenib and pazopanib for progressive or symptomatic desmoid tumors[1].

Community Support

Beyond research, the foundation aims to support patients and caregivers by providing resources and fostering a sense of community. They work to empower individuals affected by desmoid tumors, promoting a collaborative environment for those seeking support and answers[4].