Canadian Hemophilia Society Alberta Chapter

The Canadian Hemophilia Society Alberta Chapter is a grassroots, nonprofit organization dedicated to improving the health and quality of life of individuals living with inherited bleeding disorders, such as hemophilia and von Willebrand disease. It operates as a regional branch of the Canadian Hemophilia Society, working within Alberta to support affected individuals and their families while also striving toward finding a cure for these disorders.

History and Purpose

Established as a registered charity under the Business Registration Number 891868846RR0001, the Alberta Chapter focuses on advocacy, education, and support services tailored to meet the needs of people with inherited bleeding disorders in the province. Its work includes providing resources and information, facilitating community connections, and promoting research initiatives aimed at improving treatment and health outcomes.

Mission

The organization's core mission is to enhance the quality of life for all those affected by inherited bleeding disorders in Alberta and to ultimately contribute to the discovery of a cure. This commitment is demonstrated through grassroots efforts and a nonprofit model that relies on community support and donations rather than government funding.

Activities and Programs

The Alberta Chapter delivers various programs and services that support people living with bleeding disorders. These encompass educational workshops, advocacy for access to treatment, and emotional and social support networks. Donations enable the chapter to continue and expand these initiatives, including participation in research funding and public awareness campaigns.

Funding and Support

Operating independently from government financial support, the chapter depends on charitable donations from individuals and organizations. It offers multiple donation options, including online giving and vehicle donations, to facilitate contributions. Donors receive tax receipts for their support, helping to incentivize continued community involvement.

Organizational Structure

As part of the larger Canadian Hemophilia Society, the Alberta Chapter collaborates with national and provincial partners to standardize care and promote best practices across Canada. It maintains a local presence in Edmonton to engage directly with the community it serves.

The Canadian Hemophilia Society Alberta Chapter remains a vital resource and advocate for those affected by inherited bleeding disorders, uniting patients, families, health professionals, and volunteers in shared efforts to improve lives and pursue breakthroughs in treatment.