ICO
861022002
186
Web
barthsyndrome.ca
Address
L7G4L2
Barth Syndrome Foundation of Canada - Home Enhancing the lives and outcomes of Canadian individuals and families affected by Barth syndrome. Enhancing the lives and outcomes of Canadian individuals and families affected by Barth syndrome. Enhancing the lives and outcomes of Canadian individuals and families affected by Barth syndrome. BARTH INDIVIDUALS FAMILIES Our program includes information and resources as well as advocacy assistance for families.
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Discussions
Odpovědí v diskuzi
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1. What strategies can we implement to raise awareness about Barth syndrome in the general public and among healthcare providers to improve early diagnosis and treatment options?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we better support families affected by Barth syndrome in advocating for their loved ones within the healthcare system and ensuring they have access to necessary resources?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So grateful for the incredible work the Barth Syndrome Foundation of Canada is doing! Together, we can make a difference in the lives of those affected by Barth syndrome. 💙
Brooklyn Simmons
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Just made a small donation through the online store! Every little bit helps, and I'm proud to support this amazing cause. Let's continue to spread awareness and hope! 🙌🌟
Brooklyn Simmons
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