PHACES Foundation of Canada

The PHACES Foundation of Canada is a registered Canadian nonprofit public foundation dedicated to supporting individuals and families affected by PHACE syndrome. It operates under the business registration number 805325883RR0001. The foundation focuses on advocacy, education, and support related to PHACE syndrome both throughout Canada and internationally.

Mission and Activities

The organization aims to raise awareness about PHACE syndrome, a rare disorder characterized by a combination of large infantile hemangiomas and anomalies affecting the brain, heart, eyes, and arteries. Through educational initiatives, advocacy efforts, and community support programs, the PHACES Foundation of Canada seeks to improve the quality of life for those impacted by the syndrome and to facilitate access to necessary medical care and research resources.

Collaborations and Resources

The PHACES Foundation of Canada collaborates with various medical research and support entities dedicated to vascular anomalies and birthmarks, including international organizations. It is recognized as a resource within networks such as the PHACE Syndrome Registry and supports connections between patients, families, and healthcare professionals to advance understanding and treatment of the syndrome.

Charity Status

Classified as a public foundation, the PHACES Foundation of Canada is designated as a charity focusing on "Other Purposes Beneficial to the Community," operating primarily within the foundation category that funds community-beneficial initiatives.

Significance

By concentrating efforts on PHACE syndrome—a complex congenital condition involving segmental facial hemangiomas and associated malformations of the brain, arteries, heart, and eyes—the foundation plays a vital role in promoting research, fostering medical knowledge, and providing a support network for affected individuals and their families across Canada and beyond.

This summary is based on information about the organization's registration, charitable classification, and its role in advocacy and education for PHACE syndrome, as cited by Canadian charity data and disease-related medical registries.[1][2]