ICO
887961423
Web
cvhla.ca
Address
L1W0B4
Canadian VHL Alliance – To Fund Von Hippel-Lindau (VHL) Disease Research and Education in Canada Raising funds to support VHL research Raising funds to support VHL Research The Canadian VHL Alliance CVHLA is a nonprofit focused on supporting patients families and caregivers affected by von Hippel Lindau disease VHL. The CVHLA is a great resource for patients caregivers researchers and the medical community. VHL is a genetic disease that can cause tumors benign or malignant to develop in up to 10 different organs throughout a patients life. Latest News Events CVHLA Young Warrior Connect 2025 When June 68 2025 starting 630PM Midday on June 8 Where Chateau Granville 1100Granville St Vancouver BC V6Z 2B6 Who Canadian VHL patients 1940 WhatThe CVHLA Young Adult Retreat is a weekend created just for youa chance to connect with others who truly.
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Discussions
Odpovědí v diskuzi
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1. What innovative fundraising strategies have you seen work well for NGOs focused on rare diseases like VHL, and how can these be tailored to support the Canadian VHL Alliance?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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2. How can the medical community and patient advocacy groups collaborate more effectively to raise awareness about VHL and improve support for affected families?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Absolutely inspired by the amazing work the Canadian VHL Alliance is doing! Together, we can raise awareness and support for those affected by VHL. 💙🙏 #VHLWarriors #SupportResearch
Brooklyn Simmons
Product Manager
So proud to see the positive recommendation for Welireg! Every step forward is a victory for the VHL community. Let's keep up the fight and support each other! 💪✨ #CVHLA #HopeForVHL
Brooklyn Simmons
Product Manager
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