Canadian Pulmonary Fibrosis Foundation
The Canadian Pulmonary Fibrosis Foundation (CPFF) is a registered Canadian charity dedicated to supporting individuals affected by pulmonary fibrosis (PF), a progressive disease characterized by lung scarring that impairs respiratory function. Recognized by Canada Revenue Agency under business number 850554858RR0001, the organization focuses on patient advocacy, awareness campaigns, and research funding while providing resources to improve quality of life for patients and caregivers.
Mission and vision
The CPFF's mission is to enhance the lives of those living with pulmonary fibrosis through support services, public education, and promoting research advancements. Its vision is a world free of pulmonary fibrosis.
Activities
- Patient support: Offers compassionate assistance, including guidance for medical care and lifestyle adjustments, particularly for those awaiting or recovering from lung transplants.
- Advocacy: Works to influence healthcare policies and increase access to specialized treatments.
- Research funding: Allocates resources to studies aimed at understanding PF causes and improving therapies.
- Awareness campaigns: Educates the public and healthcare providers about PF symptoms, diagnosis, and management.
Impact
The CPFF is Canada's only national organization focused exclusively on pulmonary fibrosis. It collaborates with healthcare institutions to facilitate support groups and connects patients with critical resources, including transplant-related guidance. The foundation also emphasizes the vulnerability of PF patients to respiratory infections, advocating for protective measures during health crises.
Recognition
While the CPFF operates independently, it is recognized by international partners such as the Pulmonary Fibrosis Foundation (PFF) in the U.S., which acknowledges its charitable efforts. The CPFF's initiatives aim to reduce the burden of PF through community engagement and systemic healthcare improvements.
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