**Huntington Society of Canada**
The **Huntington Society of Canada** (HSC; French: *Société Huntington du Canada*) is a Canadian nonprofit organization dedicated to supporting individuals and families affected by Huntington’s disease (HD). Established in 1973, the HSC focuses on research funding, care services, public education, and advocacy for this inherited neurodegenerative disorder.
### Mission and activities
The HSC operates nationwide to advance research into treatments and a cure for HD, while improving quality of life through support programs. Key initiatives include:
- **Research funding**, including the Navigator Research Program (grants up to $75,000/year) and Student Summer Fellowships for undergraduates[3].
- **Family services**, such as counseling, support groups, and referrals to specialized clinics[4][5].
- **Public awareness campaigns** to educate communities and healthcare professionals about HD[1][3].
### Organizational structure
Governed by a volunteer board, the HSC maintains regional chapters and collaborates with international HD organizations. It funds the Canadian HD DNA Bank and supports clinical research, including contributions to the 1993 discovery of the HD gene[1][2]. In 2023, the organization established a $3 million endowed research chair at the University of Western Ontario through a matched funding initiative[3].
### Recognition
Charity Intelligence Canada rates the HSC as a four-star charity, noting its sustainable reserve funds and reasonable administrative costs[3]. The organization’s emblem, a stylized amaryllis, symbolizes global HD advocacy efforts[2].ICO
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huntingtonsociety.ca
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N2L1T2
Huntington Society of Canada Huntington Society of Canada Navigation Main Menu The Disease Learn about HD and connect with our Family Services team. Research Get up to date information about research and clinical trial info. Connecting Find social workers youth families and volunteers who support each other. Latest News Events 6 February 2025 Researchers tackle major health challenges with 16 million in funding from CIHR Feb.
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From Social media
News about HUNTINGTON SOCIETY OF CANADA from their social media (Facebook and X).
- HUNTINGTON SOCIETY OF CANADA
- 2025-05-15
It’s 𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗛𝗗 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗗𝗮𝘆, and while awareness is important year-round, it’s great to have a day when we unite with our global counterparts to talk about Huntington disease. (fb) ... more
Liked (17) Commented (1)
- HUNTINGTON SOCIETY OF CANADA
- 2025-05-14
In honour of International HD Awareness Day tomorrow, 𝗠𝗮𝘆 𝟭𝟱, iconic landmarks—including the 𝗖𝗡 𝗧𝗼𝘄𝗲𝗿 𝗶𝗻 𝗧𝗼𝗿𝗼𝗻𝘁𝗼, 𝗡𝗶𝗮𝗴𝗮𝗿𝗮 𝗙𝗮𝗹𝗹𝘀, and many more sites across Canada—will be lighting up in blue and purple. (fb) ... more
Liked (26) Commented (0)Discussions
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1. What strategies can the Huntington Society of Canada implement to enhance community awareness and support for families affected by Huntington disease?
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Brooklyn Simmons
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2. How can advancements in research and clinical trials for Huntington disease be effectively communicated to those impacted by the disease to ensure they have access to the latest information and treatments?
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So grateful for the incredible work the Huntington Society of Canada is doing! Research and support make a world of difference for families affected by HD. 💚 #Hope #HuntingtonDisease
Brooklyn Simmons
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Kudos to the Huntington Society of Canada for driving important research and providing critical support! Let's keep raising awareness and advocating for those impacted by Huntington disease! 🙌 #EndHuntingtons #CommunitySupport
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