HUNTINGTON SOCIETY OF CANADA
Non-profit dedicated to improving the quality of life for those affected by Huntington disease.
**Huntington Society of Canada**
The **Huntington Society of Canada** (HSC; French: *Société Huntington du Canada*) is a Canadian nonprofit organization dedicated to supporting individuals and families affected by Huntington’s disease (HD). Established in 1973, the HSC focuses on research funding, care services, public education, and advocacy for this inherited neurodegenerative disorder.
### Mission and activities
The HSC operates nationwide to advance research into treatments and a cure for HD, while improving quality of life through support programs. Key initiatives include:
- **Research funding**, including the Navigator Research Program (grants up to $75,000/year) and Student Summer Fellowships for undergraduates[3].
- **Family services**, such as counseling, support groups, and referrals to specialized clinics[4][5].
- **Public awareness campaigns** to educate communities and healthcare professionals about HD[1][3].
### Organizational structure
Governed by a volunteer board, the HSC maintains regional chapters and collaborates with international HD organizations. It funds the Canadian HD DNA Bank and supports clinical research, including contributions to the 1993 discovery of the HD gene[1][2]. In 2023, the organization established a $3 million endowed research chair at the University of Western Ontario through a matched funding initiative[3].
### Recognition
Charity Intelligence Canada rates the HSC as a four-star charity, noting its sustainable reserve funds and reasonable administrative costs[3]. The organization’s emblem, a stylized amaryllis, symbolizes global HD advocacy efforts[2].ICO
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HUNTINGTON SOCIETY OF CANADA
In honour of International HD Awareness Day tomorrow, 𝗠𝗮𝘆 𝟭𝟱, iconic landmarks—including the 𝗖𝗡 𝗧𝗼𝘄𝗲𝗿 𝗶𝗻 𝗧𝗼𝗿𝗼𝗻𝘁𝗼, 𝗡𝗶𝗮𝗴𝗮𝗿𝗮 𝗙𝗮𝗹𝗹𝘀, and many more sites across Canada—will be lighting up in blue and purple. Check out our stories daily to see which sites are lighting up near you, and click here for the full list: www. lightitup4hd.
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