Scleroderma Canada
Scleroderma Canada is a national nonprofit organization dedicated to supporting individuals affected by scleroderma, also known as systemic sclerosis. Registered with the Canada Revenue Agency, it operates under the business number 869588772RR0001.
Mission
The mission of Scleroderma Canada is multifaceted, focusing on promoting public awareness of scleroderma, providing support and resources to patients and their families, and funding research toward finding a cure for the disease. The organization works collaboratively with regional scleroderma groups across Canada to achieve these objectives[2][4].
Activities
- Public Awareness and Education: Scleroderma Canada engages in efforts to raise awareness about scleroderma among the general public and the medical community. This includes educational programs and resources aimed at enhancing understanding of the disease[4].
- Support for Patients: The organization provides support to patients diagnosed with scleroderma and their families. This support includes access to valuable resources and information to help navigate life after diagnosis[1].
- Research Funding: A significant portion of the organization's activities is dedicated to supporting research into scleroderma. To date, Scleroderma Canada has raised over $1 million for research initiatives, demonstrating its commitment to finding a cure for the disease[1][4].
Collaborations
Scleroderma Canada collaborates with other organizations and research groups, such as the Canadian Scleroderma Research Group (CSRG), to enhance research capacity and knowledge dissemination. These collaborations involve working with various stakeholders, including scientists from multiple disciplines and patient advocacy groups[5].
Impact and Donations
The organization is reliant on donations to fulfill its mission. All donations are dedicated to supporting research and promoting greater awareness of scleroderma. As a registered charity, Scleroderma Canada provides tax receipts for donations, supporting its ongoing work[4].
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