ICO
834338691
Web
cfopn.org
Address
L4E0K2
Canadian FOP Network Our Mission Dedicated to raising awareness and research funds for a rare bone disease called Fibrodysplasia Ossificans Progressiva FOP What is Fibrodysplasia Ossificans Progressiva FOP. FOP Turns Children into Human Statues Tin Soldiers Searching for the Undiagnosed around the world and in Canada Past EVENTS LONDONBrooke Connell Golf Tournament NEW MARKETRide Walk to Cure FOP SAULT STE MARIEAnnual 5k RunWalk for FOP Videos from our Global FOP Community Our Expert Partner The International FOP Association IFOPA You can also visit FocusonFOP in Canada for uptodate information CFOPN is a member of . .
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Discussions
Odpovědí v diskuzi
1
What innovative fundraising ideas have other organizations used to raise awareness and funds for rare diseases like Fibrodysplasia Ossificans Progressiva (FOP)?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can we better support families and individuals affected by FOP in our communities, especially in terms of access to medical resources and emotional support?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
🌟 It's heartwarming to see such dedication towards raising awareness for FOP. Together, we can make a difference and bring hope to those affected by this rare condition! #CureFOP #FOPAwareness
Brooklyn Simmons
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💚 Thank you for your incredible work in the community! Every step taken and every dollar raised brings us closer to a cure for FOP. Let's keep spreading the word! #FibrodysplasiaOssificansProgressiva #HopeForFOP
Brooklyn Simmons
Product Manager
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