Spina Bifida and Hydrocephalus Association of Canada

The Spina Bifida and Hydrocephalus Association of Canada (SBHAC) is a Canadian nonprofit organization dedicated to supporting individuals affected by spina bifida and/or hydrocephalus, as well as their families. Established in 1981, the association focuses on improving the quality of life of these individuals through advocacy, education, awareness, and research initiatives[1][5].

History and Mission

Since its inception, SBHAC has worked tirelessly to represent and assist people living with spina bifida, a neural tube defect characterized by incomplete development of the spinal vertebrae, and hydrocephalus, a condition involving abnormal accumulation of cerebrospinal fluid in the brain which leads to increased intracranial pressure[1][5]. The association’s mission centers on enhancing the lives of individuals with these conditions by providing resources, support networks, and opportunities for education.

Programs and Services

SBHAC offers a wide range of programs designed to address the medical, social, and educational needs of its members, which number approximately 2,400 across 11 chapters in Canada[5]. Key services and initiatives include:

• A toll-free 800 Help Line providing support and information
• Support networking for individuals and families affected
• Educational workshops, seminars, and an annual national conference
• Research grants and scholarships for students with spina bifida and/or hydrocephalus
• Public awareness campaigns to increase understanding of these conditions
• Educational materials such as fact sheets, articles, and guides tailored for parents, professionals, and schools
• A lending library featuring books, guides, handbooks, and videos
• A regular newsletter titled "Podium"[1][5][4]

Impact

Through its comprehensive resources and community involvement, the SBHAC plays a crucial role in advocating for improved healthcare, accessibility, and social inclusion for those living with spina bifida and hydrocephalus in Canada. The association fosters a supportive environment that empowers individuals and families to manage their conditions and improve their well-being[1][5].

This charitable organization is registered under the business number 107999328RR0001.