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Our Mission - Soft Bones Canada Signs Symptoms Our Story Join Our Community Contact Unlocking the potential to live well with hypophosphatasia. Educate Discover answers to frequently asked questions and a collection of publications resources and programs to learn more about research treatments and living life well with HPP About HPP HPP is a rare metabolic bone and tooth disorder with several forms from mild to severe. Living with HPP Useful resources benefits tips and programs to support living well HPP Media Print and Visual Aids to understand HPP and its effects on the body EMPOWER Understanding what shapes access and policy empowers us to confidently engage in topics that impact our lives. It also provides researchers and health care professionals with patient insights that result in improved diagnostics primary care and therapies.
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From Social media
News about Soft Bones Canada from their social media (Facebook and X).
- Soft Bones Canada
- 2021-03-09
Fighting Rare Diseases: Finding Treatments – Bringing Hope https://t. (tw) ... more
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- Soft Bones Canada
- 2021-03-03
In celebration of Rare Disease Day, our very own SBC director, Jen Boin, will be speaking for RareDIG’s online meeting. (tw) ... more
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Odpovědí v diskuzi
1
1. How can we leverage social media to raise awareness about hypophosphatasia and connect families affected by this condition?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. What strategies can NGOs implement to improve access to specialized care and resources for individuals and families dealing with rare diseases like hypophosphatasia?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
🌟 Love what Soft Bones Canada is doing to raise awareness about HPP! Together, we can empower each other and create a strong community for those affected. Let's keep spreading the word! 💜 #HPPAwareness #CommunitySupport
Brooklyn Simmons
Product Manager
💪 Thank you, Soft Bones Canada, for your dedication to educating and connecting everyone impacted by Hypophosphatasia! Every step we take together makes a difference. Let's keep unlocking the potential to live well! 🌈 #LivingWellWithHPP #TogetherStronger
Brooklyn Simmons
Product Manager
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Clean, community-driven, and full of heart — love it.
Brooklyn Simmons
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The idea behind Eduo is genius — let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.
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