Soft Bones Canada

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Educating, empowering & connecting those affected by the metabolic musculoskeletal and tooth disease Hypophosphatasia; raising awareness to improve outcomes.

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809947765

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LETHBRIDGE

Address: PO BOX 33085 RPO UPLANDS, LETHBRIDGE, LETHBRIDGEWeb: Sign in to see organisation websiteX (Twitter): softbonescanadaICO: 809947765

Our Mission - Soft Bones Canada Signs Symptoms Our Story Join Our Community Contact Unlocking the potential to live well with hypophosphatasia. Educate Discover answers to frequently asked questions and a collection of publications resources and programs to learn more about research treatments and living life well with HPP About HPP HPP is a rare metabolic bone and tooth disorder with several forms from mild to severe. Living with HPP Useful resources benefits tips and programs to support living well HPP Media Print and Visual Aids to understand HPP and its effects on the body EMPOWER Understanding what shapes access and policy empowers us to confidently engage in topics that impact our lives. It also provides researchers and health care professionals with patient insights that result in improved diagnostics primary care and therapies.

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Pamela

1. How can we leverage social media to raise awareness about hypophosphatasia and connect families affected by this condition?

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Linda

πŸ’ͺ Thank you, Soft Bones Canada, for your dedication to educating and connecting everyone impacted by Hypophosphatasia! Every step we take together makes a difference. Let's keep unlocking the potential to live well! 🌈 #LivingWellWithHPP #TogetherStronger

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Lucy

2. What strategies can NGOs implement to improve access to specialized care and resources for individuals and families dealing with rare diseases like hypophosphatasia?

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Patricia

🌟 Love what Soft Bones Canada is doing to raise awareness about HPP! Together, we can empower each other and create a strong community for those affected. Let's keep spreading the word! πŸ’œ #HPPAwareness #CommunitySupport

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Mental Health Treatment Category

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LETHBRIDGE

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